Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), is a complex and often misunderstood condition that affects hundreds of thousands of Australians. In 2025, the spotlight on this debilitating illness has never been brighter — especially among younger populations. A growing number of teenagers and young adults are being diagnosed with ME/CFS, prompting urgent discussions around awareness, treatment, and support systems.
What is Chronic Fatigue Syndrome?
ME/CFS is a long-term illness characterized by extreme fatigue that doesn’t improve with rest and isn’t directly caused by other underlying conditions. It can lead to a wide range of symptoms including cognitive difficulties (“brain fog”), muscle pain, sleep disturbances, and post-exertional malaise — a worsening of symptoms after physical or mental activity.
The condition can be triggered by viral infections such as Epstein-Barr virus (EBV), which causes mononucleosis, or even following cases of Long COVID. Recent studies have shown an uptick in ME/CFS diagnoses among Australian youth since the pandemic, suggesting a possible link between post-viral syndromes and the onset of the disease.
Rising Cases Among Young Australians
According to data released by the Australian ME/CFS Association in early 2025, there has been a 30% increase in reported cases among individuals aged 15–30 over the past five years. This rise is partly attributed to better recognition of the condition by healthcare professionals and greater awareness among patients and families.
Schools and universities across Australia are increasingly encountering students struggling with ME/CFS, many of whom experience significant disruptions to their education and social lives. Some are forced to take extended leave, while others rely on flexible learning arrangements to continue their studies.
Challenges in Diagnosis and Treatment
One of the biggest challenges facing young Australians with ME/CFS is obtaining a timely and accurate diagnosis. Because symptoms can mimic those of depression, anxiety, or other chronic illnesses, many go undiagnosed for months or even years. The lack of a definitive diagnostic test adds to the difficulty.
Treatment remains largely individualized, focusing on symptom management rather than a cure. While some patients benefit from graded exercise therapy (GET) or cognitive behavioral therapy (CBT), recent research has led to a shift away from these approaches due to mixed outcomes and concerns about exacerbating symptoms.
Instead, many Australian doctors are now recommending pacing techniques , where patients learn to manage their energy levels to avoid overexertion. Additionally, nutritionists and integrative health practitioners are playing a larger role in helping patients address nutritional deficiencies and digestive issues commonly associated with ME/CFS.
Support Systems and Advocacy
In response to rising demand, several organizations have expanded their services to support young people living with ME/CFS. The ME/CFS NSW and Emerge Australia have launched new online platforms offering peer support groups, webinars, and resources tailored specifically for students and young adults.
In 2025, the federal government announced funding for a national awareness campaign titled “Not Just Tired” , aimed at educating teachers, parents, and healthcare providers about the realities of ME/CFS. The initiative includes training modules for schools and general practitioners, as well as public service announcements.
Universities like the University of Melbourne and the Australian National University have also introduced disability support programs that include accommodations for students with invisible illnesses like ME/CFS. These may involve extensions on assignments, remote learning options, and access to campus wellness centers.